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58 King William Road, Goodwood, South Australia 5034
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Teachers & Service Providers
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A
Teachers Guide To Help Young Carers
(adapted from Carers NSW
School Information Package)
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| Children
and young people who live in a home environment where there
is chronic illness; physical and/or intellectual disability;
mental health issues; sensory impairment; frail aged; drug
and alcohol dependency etc...are more than likely assisting
in the provision of home based care.
Children and young people can become involved
in a Carer role from a very early age (as young as 5 years
of age) providing practical assistance and personal intimate
care to a parent, sibling, or relative within the home environment.
The tasks undertaken by young Carers
vary according to the nature and extent of the care recipient's
illness or disability. Top
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How
many Young Carers are there? |
The
Australian Bureau of Statistics estimates that there are 181,100
young Carers under the age of 18 across Australia. The numbers
of children and young people assuming a Carer role within
the home environment is increasing at significant rates yet
community and Government awareness remains limited. Top |
What
are the effects of Caring? |
| Young
people have stated, where caring is a shared responsibility,
and where support and assistance is given, the caring role
can be a very rewarding one for both Carer and care receiver.
Research shows that where children
and young people are left to care unsupported and unassisted,
the caring role has a negative impact on their lives. Top |
What
are the Issues of Concern? |
What
we know about children who fulfil a caring role without the
support and assistance of others, is that the caring role
impinges on every area of their lives;
- Emotional / psychological distress.
- Nervous exhaustion.
- Loss of childhood.
- Sleep deprivation.
- Interrupted education through absenteeism.
- Inability to concentrate and meet learning
objectives at school.
- Deteriorating health i.e. back and joint
pain.
- Restricted education, employment and
life opportunities
- Isolation / aloneness. Top
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What
are the needs of Young Carers? |
Young Carers need to be recognised - most children, and their families, will not identify
with the term 'young Carer'. Families just get on with the
business of caring for a family member because that is what
they do. Teachers are often best placed to recognise a child
who may be assisting with home based care.
Young Carers
need somebody they can talk to who will listen and
believe their stories and experiences.
Young Carers
need information about their relative's condition in
language and concepts that are age appropriate.
Young Carers
need Time Out - time and space to themselves for social
and personal development, rest and recreation.
Young
Carers need to be asked what would make a difference for them
in terms of support and assistance - their responses
need to be listened to carefully. Top |
How
to recognise Young Carers who may need support |
The following list indicates key issues that may show that
a young person is a Carer and is having difficulties as a
result of their caring role.
- False maturity - acting much older than their age
- Absenteeism - regularly not attending school
- Does not take part in extra activities outside school
hours
- Often or always late for school
- Under or over achieving in school
- Depression
- Tiredness
- Backache
- Not wanting the parent to come to school
- Distracted at school
- Few friends - exhibits a helper role in friendships
- Not eager to talk about home life
- Holiday activities restricted to confines of home environment
- Child or Parent repeatedly misses appointments
- Has a need to regularly use a telephone during school
hours
- May regularly leave school grounds during recess and lunch
breaks
There could be several explanations
for the presence of any of the above, however a combination
of these may point to a child fulfilling a Carer role in the
home environment. Top |
- Listen carefully
- Believe the child's experience.
- Acknowledge the young persons contributions.
- Offer the child appropriate information,
support and choices.
- Respect the child's wishes.
- Protect the student's privacy and
confidentiality.
These characteristics establish a
trusting relationship. Acting this way will enable you to
more readily and appropriately support young carers. Top |
A
child may need:
- Extra time with an assignment.
- Extra support with their school
work.
- Someone to talk to.
- Help to negotiate relationships
with other students.
- Information
- Help to work out a way that they
could participate more fully in school activities.
- Help at home. Top
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There
are many possible ways of helping a young Carer in your school.
You could;
- Offer to be available to talk with the young Carers about
their needs, problems and concerns.
- Offer young carers flexibility in meeting educational
requirements: particularly those who have to spend time
away from school or who have considerable care responsibilities
in non-school hours.
- Consider special access requirements when arranging parent/teacher
sessions.
- Seek assistance from your Principal or Student Welfare
Support Staff and from the School Counsellor or the child's
year adviser, if in a high school
- Utilise the school counselling system
- Assist the student to seek appropriate support.
- Link the student with Carer Support and Respite Centres
in your local area.
- Tell them about the Kids Help Line (1800 55 1800 - free
call).
- Consider whether the Peer Support system of your school
could assist.
- Transfer appropriate information, with the parent or student's
consent, should the child change schools.
- Support options appropriate to their age, culture, preferences
and situation,
- Provide special attention at significant times in their
life (such as during, or leading up to, school examinations
or when the person being cared for is ill or hospitalised). Top
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Guide
To Assist Health Professionals And Emergency Services Personnel
To Help Young Carers
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If
adult Carers are the hidden face of Caring then children
and young people are the invisible face of caring. Children and young people rarely have a choice about whether
or not they will participate in the provision of home based
care. When families are faced with illness, disability, sensory
impairment, or caring for the frail aged etc.. they will do
whatever it takes to provide their loved ones with the best
possible care. This requires the commitment, cooperation and
help of all members of the immediate family unit and where
possible the assistance of the wider family. There are a number
of reasons that children and young people take on a carer
role. They do so out of a sense of family obligation, commitment
and love for a parent or sibling or relative or because they
are delegated to the carer role by the family unit, or they
are coerced into a carer role because there is nobody else
to provide the care required, for example, children and young
people who live in single parent homes. What ever the family
configuration, circumstances and situations, families organise
themselves the best way they can in order to meet the care
needs of the family member. Top |
| Young
Carers undertake levels of responsibility and tasks that are
equal to the responsibility and levels of caring that adult
Carers undertake, but with little or no formal recognition,
support and services that are available to adult Carers.
Young Carers do personal
care tasks such as showering, toileting, dressing and
grooming; many are required to assist with manual
handling transfers to and from the bed to the toilet/shower
to the chair in the lounge room for example; almost all young
Carers will carry out household
tasks such as house cleaning, laundry tasks, shopping
and meal preparation, minding of and care for younger siblings.
Others manage the family finances, that is, managing the weekly budget and paying household accounts. Treatment and medication management is a routine daily task for many young Carers. Young Carers
are required in many households to accompany
and support the person they care for to get to and from medical
and routine appointments. Young Carers from culturally
and linguistically diverse backgrounds will often be required
to act as the interpreter for
parents and other family members who are limited in
their use of the English language. Young Carers learn to respond
to First Aid and Emergency situations as part of their Carer role - in many situations the
person being cared for is dependent and reliant on their young
Carer to know how to respond in the case of an emergency or
health crisis. The most challenging and difficult of all responsibilities
is the requirement of young Carers to provide
ongoing consistent emotional support to an adult care
receiver. Top |
What
Can Health Professionals Do To Assist Young Carers? |
When
consulting with an adult who has a chronic medical condition,
a physical disability, a mental health illness, sensory impairment
or is frail aged be aware that if a child or young person
lives in their home, or is regularly accompanying
them, then the child or young person is likely to be significantly
involved in the provision of their care needs, or taking responsibility
for the care of siblings.
- Recognise and acknowledge young people as significant care providers in home based
care.
- Talk with young Carers who accompany care receivers to hospital and medical appointments
about the ways they assist in providing care for that person.
- Provide information. Provide young Carers with easy to understand information
about the medical/psychiatric condition or disability of
the person they care for.
- Encourage young Carers to
talk about what their needs are. Young people will
in most cases want to be involved in the provision of care
for a family member. Where the demands of caring are shared
across family and friends, young people say the experience
is a positive and rewarding one. This is rarely the case
for a young person who finds themselves in a carer role
with little or no support or assistance.
- Be a person young Carers
can talk to and depend on for information and support. Top
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What
Can Emergency Services Do To Assist Young Carers? |
Young
Carers are the invisible face of caring. As such they are
overlooked and undervalued for their resourcefulness, knowledge
and skills in caring for an adult or sibling. Young Carers
are often left in the case of an emergency not knowing what
has happened to the person they care for or where that person
has been taken or if they will see the person they care for
again.
- Be aware
when called to an emergency situation. When a child
or a young person is present in a home, where there is a
chronic medical condition, a physical disability, a mental
health illness, sensory impairment or frail aged, it is
more than likely that that child or young person is significantly
involved in the daily support and care of the care receiver.
- Give recognition to
young Carers - ask the young person to tell you what they
know about the situation that led to the emergency situation.
Young Carers are very informed about the medical and mental
health conditions, medications, treatments and patterns
of challenging behaviours, of the person they care for.
- Be honest with young
Carers about the condition of the care receiver.
- Inform the young Carer about
what has happened to the care receiver and where you are
going to take him/her - that is, talk to the young
Carer about the medical condition and what has brought about
the emergency situation; if the care receiver is to be transferred
to a hospital, tell them which hospital you are taking them
too.
- Check with the young Carer
to see what support they have in place if you are taking
the care receiver to hospital - it may be that the
care receiver is the sole parent or guardian of young Carer.
Some young Carers will have an emergency care plan in place
for themselves in the event of hospitalisation of an adult
care receiver. Top
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What
Should Young Carers Have A Right To Expect? |
Australia
ratified the United Nations Convention on the Rights of the
Child on 17 December 1990. Governments are expected to uphold
these rights. Articles particularly relevant to young Carers
include a child's right to:
- Be protected without
discrimination on the grounds of race, sex, religion,
origin or disability of both the child or parent(s) (Article
2).
- Be a primary consideration in any legal or administrative decision affecting the child
(Article 3).
- Not be separated from
their parents unless it is in the best interests of the
child (Article 9).
- Have their wishes taken into account considering their age and maturity (Article
12).
- Privacy (Article 16).
- Appropriate information especially that which will protect their well-being and
physical and mental health (Article 17).
- The highest attainable standards of health (Article 24).
- Benefit from social security,
taking into account the circumstances and resources of the
child and family (Article 26).
- An adequate standard of living (Article 27).
- Education (Article
28).
- Rest, leisure, play and recreation (Article
31).
- To be protected from engaging in work that constitutes
a threat to their health, education or development (Article
32).
Aldridge and Becker, Researchers
in the U.K. have listed what they feel young Carers should
be able to expect. This complements the United Nations declaration.
It suggests that young carers should be:
- Able to choose to be children, Carers
or both.
- Recognized and treated separately from the person needing
care.
- Heard, listened to and believed.
- Accorded respect.
- Able to receive respite and other health, social and practical
support specific to their needs.
- Protected from physical and psychological harm (including
protection from injury caused by lifting).
- Offered access to trained individuals and agencies who
can provide information, advice and support.
- Able to access independent and confidential representation
and advocacy.
- Assessed fully, in terms of their needs, strengths, weaknesses
and racial, cultural and religious preferences.
- Able to appeal and complain.
- Able to choose to stop caring.
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