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Teachers & Service Providers

 

A Teachers Guide To Help Young Carers
(adapted from Carers NSW School Information Package)

Who Are Young Carers?
How many Young Carers are there?
What are the effects of Caring?
What are the Issues of Concern?
What are the needs of Young Carers?
How to recognise Young Carers who may need support
How Can You Respond?
Assisting Young Carers
What Can You Offer?


A Guide To Assist Health Professionals And Emergency Services Personnel To Help Young Carers

What Young Carers Do?
What Can Health Professionals Do To Assist Young Carers?
What Can Emergency Services Do To Assist Young Carers?
What Should Young Carers Have A Right To Expect?

 

Australian Statistics and information on Young Carers

How many Young Carers are there?

 

A Teachers Guide To Help Young Carers
(adapted from Carers NSW School Information Package)

 

Who Are Young Carers?

Children and young people who live in a home environment where there is chronic illness; physical and/or intellectual disability; mental health issues; sensory impairment; frail aged; drug and alcohol dependency etc...are more than likely assisting in the provision of home based care.

Children and young people can become involved in a Carer role from a very early age (as young as 5 years of age) providing practical assistance and personal intimate care to a parent, sibling, or relative within the home environment.

The tasks undertaken by young Carers vary according to the nature and extent of the care recipient's illness or disability. Top

 

How many Young Carers are there?

The Australian Bureau of Statistics estimates that there are 181,100 young Carers under the age of 18 across Australia. The numbers of children and young people assuming a Carer role within the home environment is increasing at significant rates yet community and Government awareness remains limited. Top

 

What are the effects of Caring?

Young people have stated, where caring is a shared responsibility, and where support and assistance is given, the caring role can be a very rewarding one for both Carer and care receiver.

Research shows that where children and young people are left to care unsupported and unassisted, the caring role has a negative impact on their lives. Top

 

What are the Issues of Concern?

What we know about children who fulfil a caring role without the support and assistance of others, is that the caring role impinges on every area of their lives;

  • Emotional / psychological distress.
  • Nervous exhaustion.
  • Loss of childhood.
  • Sleep deprivation.
  • Interrupted education through absenteeism.
  • Inability to concentrate and meet learning objectives at school.
  • Deteriorating health i.e. back and joint pain.
  • Restricted education, employment and life opportunities
  • Isolation / aloneness. Top

 

What are the needs of Young Carers?

 

Young Carers need to be recognised - most children, and their families, will not identify with the term 'young Carer'. Families just get on with the business of caring for a family member because that is what they do. Teachers are often best placed to recognise a child who may be assisting with home based care.

Young Carers need somebody they can talk to who will listen and believe their stories and experiences.

Young Carers need information about their relative's condition in language and concepts that are age appropriate.

Young Carers need Time Out - time and space to themselves for social and personal development, rest and recreation.

Young Carers need to be asked what would make a difference for them in terms of support and assistance - their responses need to be listened to carefully. Top

 

How to recognise Young Carers who may need support

The following list indicates key issues that may show that a young person is a Carer and is having difficulties as a result of their caring role.

  • False maturity - acting much older than their age
  • Absenteeism - regularly not attending school
  • Does not take part in extra activities outside school hours
  • Often or always late for school
  • Under or over achieving in school
  • Depression
  • Tiredness
  • Backache
  • Not wanting the parent to come to school
  • Distracted at school
  • Few friends - exhibits a helper role in friendships
  • Not eager to talk about home life
  • Holiday activities restricted to confines of home environment
  • Child or Parent repeatedly misses appointments
  • Has a need to regularly use a telephone during school hours
  • May regularly leave school grounds during recess and lunch breaks

There could be several explanations for the presence of any of the above, however a combination of these may point to a child fulfilling a Carer role in the home environment. Top

 

How Can You Respond?

  • Listen carefully
  • Believe the child's experience.
  • Acknowledge the young persons contributions.
  • Offer the child appropriate information, support and choices.
  • Respect the child's wishes.
  • Protect the student's privacy and confidentiality.

These characteristics establish a trusting relationship. Acting this way will enable you to more readily and appropriately support young carers. Top

 

Assisting Young Carers

A child may need:

  • Extra time with an assignment.
  • Extra support with their school work.
  • Someone to talk to.
  • Help to negotiate relationships with other students.
  • Information
  • Help to work out a way that they could participate more fully in school activities.
  • Help at home. Top

 

What Can You Offer?

There are many possible ways of helping a young Carer in your school. You could;

  • Offer to be available to talk with the young Carers about their needs, problems and concerns.
  • Offer young carers flexibility in meeting educational requirements: particularly those who have to spend time away from school or who have considerable care responsibilities in non-school hours.
  • Consider special access requirements when arranging parent/teacher sessions.
  • Seek assistance from your Principal or Student Welfare Support Staff and from the School Counsellor or the child's year adviser, if in a high school
  • Utilise the school counselling system
  • Assist the student to seek appropriate support.
  • Link the student with Carer Support and Respite Centres in your local area.
  • Tell them about the Kids Help Line (1800 55 1800 - free call).
  • Consider whether the Peer Support system of your school could assist.
  • Transfer appropriate information, with the parent or student's consent, should the child change schools.
  • Support options appropriate to their age, culture, preferences and situation,
  • Provide special attention at significant times in their life (such as during, or leading up to, school examinations or when the person being cared for is ill or hospitalised). Top

 

Guide To Assist Health Professionals And Emergency Services Personnel To Help Young Carers

 

If adult Carers are the hidden face of Caring then children and young people are the invisible face of caring. Children and young people rarely have a choice about whether or not they will participate in the provision of home based care. When families are faced with illness, disability, sensory impairment, or caring for the frail aged etc.. they will do whatever it takes to provide their loved ones with the best possible care. This requires the commitment, cooperation and help of all members of the immediate family unit and where possible the assistance of the wider family. There are a number of reasons that children and young people take on a carer role. They do so out of a sense of family obligation, commitment and love for a parent or sibling or relative or because they are delegated to the carer role by the family unit, or they are coerced into a carer role because there is nobody else to provide the care required, for example, children and young people who live in single parent homes. What ever the family configuration, circumstances and situations, families organise themselves the best way they can in order to meet the care needs of the family member. Top

 

What Young Carers Do?

Young Carers undertake levels of responsibility and tasks that are equal to the responsibility and levels of caring that adult Carers undertake, but with little or no formal recognition, support and services that are available to adult Carers.

Young Carers do personal care tasks such as showering, toileting, dressing and grooming; many are required to assist with manual handling transfers to and from the bed to the toilet/shower to the chair in the lounge room for example; almost all young Carers will carry out household tasks such as house cleaning, laundry tasks, shopping and meal preparation, minding of and care for younger siblings. Others manage the family finances, that is, managing the weekly budget and paying household accounts. Treatment and medication management is a routine daily task for many young Carers. Young Carers are required in many households to accompany and support the person they care for to get to and from medical and routine appointments. Young Carers from culturally and linguistically diverse backgrounds will often be required to act as the interpreter for parents and other family members who are limited in their use of the English language. Young Carers learn to respond to First Aid and Emergency situations as part of their Carer role - in many situations the person being cared for is dependent and reliant on their young Carer to know how to respond in the case of an emergency or health crisis. The most challenging and difficult of all responsibilities is the requirement of young Carers to provide ongoing consistent emotional support to an adult care receiver. Top

 

What Can Health Professionals Do To Assist Young Carers?

When consulting with an adult who has a chronic medical condition, a physical disability, a mental health illness, sensory impairment or is frail aged be aware that if a child or young person lives in their home, or is regularly accompanying them, then the child or young person is likely to be significantly involved in the provision of their care needs, or taking responsibility for the care of siblings.

  • Recognise and acknowledge young people as significant care providers in home based care.
  • Talk with young Carers who accompany care receivers to hospital and medical appointments about the ways they assist in providing care for that person.
  • Provide information. Provide young Carers with easy to understand information about the medical/psychiatric condition or disability of the person they care for.
  • Encourage young Carers to talk about what their needs are. Young people will in most cases want to be involved in the provision of care for a family member. Where the demands of caring are shared across family and friends, young people say the experience is a positive and rewarding one. This is rarely the case for a young person who finds themselves in a carer role with little or no support or assistance.
  • Be a person young Carers can talk to and depend on for information and support. Top

 

What Can Emergency Services Do To Assist Young Carers?

Young Carers are the invisible face of caring. As such they are overlooked and undervalued for their resourcefulness, knowledge and skills in caring for an adult or sibling. Young Carers are often left in the case of an emergency not knowing what has happened to the person they care for or where that person has been taken or if they will see the person they care for again.

  • Be aware when called to an emergency situation. When a child or a young person is present in a home, where there is a chronic medical condition, a physical disability, a mental health illness, sensory impairment or frail aged, it is more than likely that that child or young person is significantly involved in the daily support and care of the care receiver.
  • Give recognition to young Carers - ask the young person to tell you what they know about the situation that led to the emergency situation. Young Carers are very informed about the medical and mental health conditions, medications, treatments and patterns of challenging behaviours, of the person they care for.
  • Be honest with young Carers about the condition of the care receiver.
  • Inform the young Carer about what has happened to the care receiver and where you are going to take him/her - that is, talk to the young Carer about the medical condition and what has brought about the emergency situation; if the care receiver is to be transferred to a hospital, tell them which hospital you are taking them too.
  • Check with the young Carer to see what support they have in place if you are taking the care receiver to hospital - it may be that the care receiver is the sole parent or guardian of young Carer. Some young Carers will have an emergency care plan in place for themselves in the event of hospitalisation of an adult care receiver. Top

 

What Should Young Carers Have A Right To Expect?

Australia ratified the United Nations Convention on the Rights of the Child on 17 December 1990. Governments are expected to uphold these rights. Articles particularly relevant to young Carers include a child's right to:

  • Be protected without discrimination on the grounds of race, sex, religion, origin or disability of both the child or parent(s) (Article 2).
  • Be a primary consideration in any legal or administrative decision affecting the child (Article 3).
  • Not be separated from their parents unless it is in the best interests of the child (Article 9).
  • Have their wishes taken into account considering their age and maturity (Article 12).
  • Privacy (Article 16).
  • Appropriate information especially that which will protect their well-being and physical and mental health (Article 17).
  • The highest attainable standards of health (Article 24).
  • Benefit from social security, taking into account the circumstances and resources of the child and family (Article 26).
  • An adequate standard of living (Article 27).
  • Education (Article 28).
  • Rest, leisure, play and recreation (Article 31).
  • To be protected from engaging in work that constitutes a threat to their health, education or development (Article 32).

Aldridge and Becker, Researchers in the U.K. have listed what they feel young Carers should be able to expect. This complements the United Nations declaration. It suggests that young carers should be:

  • Able to choose to be children, Carers or both.
  • Recognized and treated separately from the person needing care.
  • Heard, listened to and believed.
  • Accorded respect.
  • Able to receive respite and other health, social and practical support specific to their needs.
  • Protected from physical and psychological harm (including protection from injury caused by lifting).
  • Offered access to trained individuals and agencies who can provide information, advice and support.
  • Able to access independent and confidential representation and advocacy.
  • Assessed fully, in terms of their needs, strengths, weaknesses and racial, cultural and religious preferences.
  • Able to appeal and complain.
  • Able to choose to stop caring.
Top

 

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